Welcome to:
AICANcer Patient Advocacy Group
The rapid adoption of Artificial Intelligence (AI) in oncology brings an unexpected hero in the fight to save millions of lives. AI holds the potential to revolutionize cancer care, accelerating drug discovery, enhancing diagnosis, and personalizing treatment - for real.
However, this power comes with inherent risks: algorithmic bias, erosion of patient control, and the continuation of health inequities.
Without the active, informed voice of the patient community, AI development risks creating a critical gap between innovation and the patient: with solutions that are technically brilliant but ethically flawed and clinically unequal.
AICANcer Patient Advocacy Group is a patient-led non-profit organization that is dedicated to ensuring that AI in oncology is developed with principles of equality, integrity, empathy, and a patient-centered focus.
Our Work
Before outlining our focus areas, it is essential to clarify what we are not. We are not an AI service, tool, or a marketplace for such solutions. We are also not a source of knowledge about diagnostics, cancer types, nor are we medical advisors on treatments and any such related. Crucially, we do not collect or sell patient data to any third party.
WE ARE a patient-led non-profit that integrates the cancer patient's voice directly into the AI development lifecycle. Our work is focused solely on patient-centered advocacy in this new age of AI in oncology. We are completely neutral, and cancer stage, and type, agnostic. To bridge the critical gap between AI innovation in oncology and the patient experience; we educate and empower patient advocates, foster collaborative, ethical AI development across the healthcare and technology sectors.
Simply, our work de-risks innovation for industry and builds trust for patients by providing four core solutions.
AI in Cancer Explained
AI in oncology is for many patients and their caregivers a very unfamiliar concept at this time. We are here to demystify it, to make it accessible and understandable. We achieve this by offering free access to our easy-to-understand, extensive and curated knowledge library - AI in Cancer Explained, which will launch in Q2-Q3 2026.
By being informed and knowing more about AI's role in cancer, patients will have the opportunity to be more involved in their cancer care, understand how their patient data is utilized and what rights they have in its usage, as well as have informed and transparent conversations with their care team.
AI-Literate Patient Advocates
To ensure AI is developed equallly and ethically, the patient must be involved from the ground up. Our flagship program is training a highly diverse, 25-person cohort of AI-Literate Patient Advocates, who represent the full spectrum of the cancer community. These certified advocates will gain a deep, non-technical understanding of AI in general, AI development lifecycles, AI in oncology, and patient data policy and regulation.
The training prepares the patient advocates to challenge, inform, and partner with companies, cancer centers and policy makers - actively shaping the future of AI in oncology to prioritize human primacy and trust.
AICANcer Patient Guidelines
This foundational document provides a comprehensive ten-point benchmark (checklist) that is advised for adoption by AI companies in partnership with patient advocates, cancer centers, and cancer foundations/organizations. By addressing these vital points, all stakeholders will contribute to ensuring that every AI innovation in oncology is founded on our four core principles: equality, integrity, empathy, and a patient-centered focus.
The AICANcer Patient Guidelines encompass ten key areas, each with detailed recommended actions: 1. Diverse Training Data, 2. Proactive De-Biasing, 3. Access Equality, 4. Data Privacy and Cryptographic Integrity, 5. Explainability to the Patient, 6. True Informed Consent, 7. Accountability Chain, 8. Quality of Life Metrics, 9. Human Oversight, and 10. Patient Feedback Integration.
Cross-Sector Partnership Programs
By securing formal MOUs with AI companies, cancer centers and cancer organizations we can move from abstract ethical commitments to demonstrable integrity, accelerating innovation while ensuring the benefits of AI are shared equally by every individual fighting cancer.
The MOUs ensure that our Patient Guidelines are applied to real-world scenarios and establish ongoing, structured patient feedback loops.
The Cancer Patient's Voice in Policy and Regulation
We represent the cancer patients by ensuring we have a standing seat at the table where patient data policy and regulation in regards to AI is being discussed. The patient is after all the expert in their experience, and their voice is the guide for responsible progress.