Our Work
Before outlining our focus areas, it is essential to clarify what we are not. WE ARE NOT an AI service, tool, or a marketplace for such solutions. We are also not a source of knowledge about diagnostics, cancer types, nor are we medical advisors on treatments and any such related. Crucially, we do not collect or sell patient data to any third party.
WE ARE a patient-led non-profit that integrates the cancer patient voice directly into the AI development lifecycle. Our work is focused solely on patient-centered advocacy in this new age of AI in oncology, completely neutral, and cancer-agnostic. We de-risk innovation for industry and build trust for patients by providing four core assets.
AI in Cancer Explained
AI in oncology is for many patients and their care givers a very unfamiliar concept at this time. We are here to demystify it, to make it accessible and understandable. We achieve this by offering free access to our easy-to-understand, extensive and curated knowledge library - AI in Cancer Explained, which will launch in Q1-2026. By being informed and knowing more about AI's role in cancer, patients will have the opportunity to be more involved in their cancer care, and have informed and transparent conversations with their care team. Sign up for access as we launch in Q1 2026!
AI-Literate Patient Advocates
To ensure AI is developed equitably and ethically, the patient must be involved from the ground up. Our flagship program is training a highly diverse, 25-person cohort of AI-Literate Patient Advocates who represent the full spectrum of the cancer community. These certified advocates will gain a deep, non-technical understanding of AI in general, AI development lifecycles, AI in oncology, and patient data policy and regulation. The training prepares the patient advocates to challenge, inform, and partner with companies, cancer centers and policymakers, actively shaping the future of AI in oncology to prioritize human primacy and trust.
Join our team as a Patient Advocate!
AICANcer Patient Ethical Framework
At the center of our mission is the Ethical Framework to ensure that equality, integrity, and empathy become foundational code in AI innovation, not an afterthought. The Framework outlines nine specific requirements and actions for AI developers and healthcare institutions to assess equity impact, patient autonomy and patient reported outcomes. We foster cross-sector collaboration with AI companies, Cancer Centers and Cancer Organizations by securing strategic partnerships where the Ethical Framework can be applied to real-world scenarios, and establish ongoing, structured patient feedback loops. AI Companies, Cancer Centers and Cancer Organizations - Contact us for partnership opportunities!
Patient Data Policy and Regulation
The data powering this life saving new AI revolution in oncology is crucial to everything from drug discovery, imaging, radiology, clinical trials, patient facing tools, services and patient care. Patients are however unaware of how their data is sourced, used, and by whom. This lack of transparency raises significant trust issues. For example what specific steps are taken to ensure the patient data remains anonymous (de-identified) and that it is only used for the stated research purpose? What access and ownership does the patient have of their own data? Are the entities that are monetizing patient data giving back to the patient community? We demand a seat at the table where discussions and decisions are made on patient data policy and regulation.